Ryan Robert Shelton Jones

1996 - 2008
LocationNewport Wales
Age11 years
Cause of DeathEpilepsy
Date of Birth20/11/1996
Date of Death30/09/2008
Visitors3,941 since 08/02/2009
Creator

My boy Ryan was diagnosed last January with benign epilepsy which i was told he would grow out of
and i had nothing to worry about he only had seizures at night.When i first see him have a seizure i
was screaming for my husband i had never see him having one before so i took him staight to a&e were
he stayed in over night he was let out the following day.For the following three weeks i kept him
next to me until i plucked up the courage to let him sleep in his own bed things went fine he did
have a few seizures but came thought them fine.then on monday 29th sept he can home full of tales
about a schoolyard kickabout with his friends as i left to go to the gym with my friend i said
goodbye to them all and my younger daughter said kiss mummy so i gave them all a kiss except for
ryan he was on the other end of the table and i could't get to him so i said see you later ry.When i
got back from the gym all the children was in bed but i noticed that there qiult covers hadn't been
put on so my husband went upstairs and helped the lads put them on.when i went upto bed myself i
checked on the boys and the other children as i aways did and ryan was breathing i use to stand
there and watch there chests moving i went to bed at 1am. the next thing i remember was my husband
calling me sarah ryan and i replied leave him if his having a seizure that's what they told us to do
he replied no his not breathing as i creeped round the corner he was lieing on his front i watched
for his chest to move but it never so jump on top bunk and said turn him over but it was to late.My
husband is a first responder and started working on him straight away but i new deep down it was to
late. i have never forgiven myself for not kissing him that day.Ryan was a victim of SUDEP or sudden
unexpected death in epilepsy. which due to a number of factors claims the lives of around 500
epilepsy patients a year in the UK but why is nobody ever told about what could happen untill it's
to late.I have cryed so much i have no tears left i miss him so so much my little angel my boy.


Recent Gifts

Recent Tributes


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Happy Birthday

Happy Birthday Ryan
Thinking of you always.
With love from Uncle Gaz, Auntie Leanne, Kea, Tiegan, Dana and Cameron xxxxxx

Gary Wheat (Uncle) Friday evening

Letting go of you

I know I have to let you go.
How I will I do not know.
I know that it's your time to die.
What I don't know is how to say goodbye.
I'll miss you so much I don't know what to do.
I guess I'll just end this poem with a goodbye and an I love you.

Jenna leigh Walters

Phyllis Frazier Harris Friday morning

sleep tight sweetheart and i no you will be looking after your mum from heaven .xxxxx


ryan mum i hope in time you can get past your feeling of guilt i am sure your son knows how much you love him
.my son has epilepsy and every night i fear something will happen to him (he has fits mostly at night) i remember being told that around 500 ppl die a year from epilepsy and since then my fear has been huge .but i think what upset me more was that i was told by a friend not by my sons doctors we put all are trust in the doctor who look after are childreamn hopefull one day the doctors will trust us to deal with all the info that we could need with regards to are childrean
your boy was a loverly child and no matter what your are still hes mum carry him your heart always xxxxxxx

Jane Thursday afternoon

A GOOD MORNING KISS ......

*Kiss*.......*Kiss*
*Kiss*.....*Kiss*
*Kiss*...*Kiss*
*Kiss**Kiss*
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...*Kiss*...*Kiss*
.........*Kiss *^*^*


...............JUST FOR YOU . X..................


miss you lots ry ry xxxx

Kirsty Liddle (Family Friend) October 16, 2009

•:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:•
_$$$$$$________*GOODNIGHT*__________$$$$$
__$$$$$$$$*______*ANGEL*________,,$$$$$$$$*
___$$$$$$$$$$,,_______________, ,$$$$$$$$$$*
____$$$$$$$$$$$$__ ._____.___$$$$$$$$$$$$
____$$$$$$$$$$$$$,_'.____.'_,,$$$$ $$$$$$$$$
____$$$$$$$$$$$$$$,, '.__,'_$$$$$$$$$$$$$$$
____$$$$$$$$$$$$$$$$.@:.$$$$$$$$$$ $$$$$$
______***$$$$$$$$$$$@@$$$$$$$$$$$****
__________,,, __*$$$$$$@.$$$$$$,,,,,,
_____,,$$$$$$$$$$$$$* @ *$$$$$$$$$$$$,,,
____*$$$$$$$$$$$$$*_@@_*$$$$$$$$$$$$$
___ ,,*$$$$$$$$$$$$$__.@.__*$$$$$$$$$$$$$,,
_,,*___*$$$$$$$$$$$ ___*___*$$$$$$$$$$*__ *',,
*____,,*$$$$$$$$$$_________$$$$$$$$$$*,,____*
______ ,;$*$,$$**'____________**'$$***,,
____,;'*___'_.*_*SWEET DREAMS*_________*___ '*,,
,,,,.;*__________________________ _ ____ '**,,,,
•:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:•
☆SLEEP TIGHT ☆ ANGEL ☆ KEEP SHINING BRIGHT ☆
•:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •

LOVE ALWAYS XXX.

Michael And Yvonne October 15, 2009

for you with love By...Isla Paschal Richardson
Read by Gregory Peck at Frank Sinatra's funeral, 1998
To Those I Love If I should ever leave you,
Whom I love To go along the silent way. . . Grieve not.
Nor speak of me with tears.
But laugh and talk of me As if I were beside you there.
(I'd come. . .I'd come, Could I but find a way! But would not tears and And grief be barriers?)
And when you hear a song Or see a bird I loved,
Please do not let the thought of me Be sad. . .
for I am loving you Just as I always have. . . You were so good to me!
There are so many things I wanted still to do. . .
So many things I wanted to say to you. . .
Remember that I did not fear. . .
It was Just leaving you That was so hard to face.
We cannot see beyond. . . But this I know:
I loved you so. . . 'twas heaven here with you

with love theresa xxx

Theresa Waters (GTS Friend) October 13, 2009

I am the wind in your hair, with you everywhere
I am the stars in the sky and the sun up high.

I am the waves in the ocean, with your every emotion
I am the snow on the ground, I am all around.

I am the flowers in the meadow, wherever you go
I am the moon at night, please know I'm alright.

I am the bird's sweet song, I am not gone
I am the blossom on a tree, you'll never forget me.

I am the rain on your face, a rainbow's embrace
I am the leaves on the ground, I'll always be around.

I am the fluffy white clouds, innocent and pure
Look all around you, you'll feel me I'm sure.

I am that warm loving feeling, deep in your heart
My memories live on, we'll never be apart.

I am all around you, in all that you see, hear and do
Just reach right out now, I am always here with you.

Love always xXx.

Michael And Yvonne October 9, 2009

for you ryan with love xxx

for you with love By...Isla Paschal Richardson
Read by Gregory Peck at Frank Sinatra's funeral, 1998
To Those I Love If I should ever leave you,
Whom I love To go along the silent way. . . Grieve not.
Nor speak of me with tears.
But laugh and talk of me As if I were beside you there.
(I'd come. . .I'd come, Could I but find a way! But would not tears and And grief be barriers?)
And when you hear a song Or see a bird I loved,
Please do not let the thought of me Be sad. . .
for I am loving you Just as I always have. . . You were so good to me!
There are so many things I wanted still to do. . .
So many things I wanted to say to you. . .
Remember that I did not fear. . .
It was Just leaving you That was so hard to face.
We cannot see beyond. . . But this I know:
I loved you so. . . 'twas heaven here with you

with love theresa xxx

Theresa Waters (GTS Friend) October 7, 2009

MISS YOU SO MUCH RYAN. ALWAYS IN MY THOUGHTS. LOVE YOU FOREVER. X LOVE KIRSTY L.

Kirsty Liddle (Family Friend) September 29, 2009

OUR PAL RYAN

WE CANT BELIEVE ITS A YEAR SINCE WE SAW YOUR CHEEKY FACE AND SMILE.YOU WERE ALWAYS READY WITH A JOKE AND ALWAYS READY TO FIGHT JAYMO AND ALAN.THEY SAY TIME IS A GREAT HEALER BUT IT DOESNT ALWAYS HELP.WE ALL MISS YOU AND THINK OF YOU CONSTANTLY.LOVE YOU AND MISS YOU ALWAYS FROM TINA ALAN AND KIDS.

Kirsty Liddle (Family Friend) September 29, 2009
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